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Hi, I am the mother of a 2 year old with failure to thrive. They suspect celiac or other diseases. I found he has this gene mutation and I believe I have it as well. I am totally new to this site and wish I had a docter to walk me through it and tell me which mutations are dangerous, but I am on a limited budget and have no idea what they would charge for advice... Any help appreciated.
- 10 years, 3 months ago
I disagree with ou 1406. I've seen what Reliv has done for people and It is non GMO. They company has been around for almost 40 years. Just research it, is all I suggest.
- 9 years, 5 months ago.
Avoid any product containing soy whether or not it's GMO.
http://articles.mercola.com/sites/articles/archive/2010/09/18/soy-can-damage-your-health.aspx
- 9 years, 5 months ago.
I have worked with Reliv Nutrition For 12 years. I have auto immune issues and it has given me back my health. There are many stories about children with failure to thrive and fantastic success with this. Look at the web site www.reliv.com and see if you can find YouTube stories with this issue (reliv & failure to thrive stories) see what info is there. There is a simple shake they can take. You have to be firm at first but there are many recipes for them to like & then they ask for it. It's worth a try.
A long as there is no soy allergies it's a blessing.
- 9 years, 5 months ago.
My son was also diagnosed as failure to thrive at that age. I went home and cried feeling I had failed as a mother. Dr later kept saying he just "wasn't going to be very big" as my husband and I aren't. Well, second son came along 4 yrs later and was 95th percentile. I kept requesting testing and they never seemed to find anything.
At 15, he was 4'9" and 63 lbs. His friends were all 6'. I pushed the Dr to send us to an endocrinologist at Riley Hospital, Indianapolis, IN (we live in Indiana). One set of 28 tests and the neurologist called saying he believed he had the answer. My son showed positive for Celiac. This was in 2005 before the big explosion of gluten-free. We researched it online and my son was sure that was it. Although he didn't have all of the symptoms, he did have stomach aches after eating Pop Tarts or cookies. He used to say that he couldn't tell if he was hungry or if his stomach hurt. We saw a pediatric gastroenterologist, he ran an endoscopy with biopsies and it was very positive.
He went ... More
- 9 years, 5 months ago.
My son was also failure to thrive . My husband and I gave him a genetic disorder called sucrose isomaltase deficiency. He's on a man enzyme to digest food. He's 23 now. Go to children's they diagonosed him
- 9 years, 6 months ago.
My son also was failure to thrive as an infant and received a something genetic from his parents It is called sucrose isomaltase deficiency. He was diagnosed at children's hospital. A look into that as well.
- 9 years, 7 months ago.
Visit the Institute for Functional Medicine ( https://www.functionalmedicine.org/practitioner_search.aspx?id=117 ) and find yourself a local practitioner. I imagine your child needs to be on a very specific diet so in the interim I would suggest feeding only organic foods and avoid anything commercial unless specifically recommended. Grains and sugars are two of the most reactive foods so you they should not be fed. One of the most nutrient rich and healing foods in home made bone broth. Chicken broth is claimed to be the most beneficial and should be made including the feet as a good source of collagen. Also, colostrum has remarkable healing properties. Lastly, a good probiotic will help. bottom line... you need to have your child diagnosed by a functional medical practitioner.
How to make bone broth.
http://wellnessmama.com/5888/how-to-make-bone-broth/
An event that will be going on for the next 24 hours discussing colostrum.
http://scdlifestyle.us8.list-manage1.com/track/click?u=e3d445f507761811031b63636&id=b25cff480...
An article about colostrum
http://thedr.com/wp-content/uploads/2015/01/ImmunoPRP-ColostrumStudiedSafeNatural1.pdf
A descent colostrum
http://www.amazon.com/Symbiotics-Colostrum-Plus-Powder-21-Ounce/dp/B000BREOR2/ref=sr_1_1?ie=UTF8...
Mercola on probiotics for infants.
http://articles.mercola.com/sites/articles/archive/2011/10/27/probiotics-for-newborn-babies.aspx
Mercola's probiotic
http://probiotics.mercola.com/probiotics.html
A place for general health information
http://www.greenmedinfo.com/
- 9 years, 8 months ago.
My son's failure to thrive was connected to decreased bile flow which effected his ability to absorb fat-soluble nutrients. Decreased bile flow effected his gut microbiome, and it acerbated his underlying disorder. (MAWulf.com) Dr. Perlmutter's book "Brain Maker" was an excellent place for us to start, and, along with mitochondrial supports, the information in his book has been proven helpful to my son.
- 9 years, 8 months ago.
Failure to thrive..... that's the exact expression for kids with high copper... Wish you success.
- 9 years, 10 months ago.
Hi Laura, As to your question about Celiac Disease, my feeling is that the biopsy being the gold standard for diagnosis is misguided. I have Celiac Disease and have had 2 normal biopsies. Checking for anti-gluten antibodies in a blood test tells you whether or not you are reacting to gluten in the diet, which is the important information. 23&Me shows a Celiac section that has 2 genes listed: HLA rs2858331 and HLA DQA1 rs2187668. I am homozygous for the first one and I have mild CD that was not diagnosed until I was 59. My son, who is 42, is heterozygous for both and he does not have Celiac Disease, but is gluten-free because of a stroke. Someone with all 4 mutations would have very severe Celiac Disease. I felt better once I was gluten-free, but I still had symptoms until I gave up grains entirely. Other factors in the diet that give similar symptoms are glutamates and histamines. Histamines cause heart palpitations! For years, I thought I was getting frequent viruses, but it was the CD making me feel like I had the flu for 3 days. Later, I realized that glutamates made me feel the same ... More
- 10 years, 3 months ago.
XH-6872 thanks so much for your profound insight. It is so complicated and anything to start baby steps on is greatly appreciated.
- 10 years, 3 months ago.
DF-7509 I keep having problems with viruses and infections. I will listen to the podcasts thanks!
- 10 years, 3 months ago.
JZ-6363 , I have been following Dr. Amy Myers blog and internet interviews. As I am having auto immune problems. I have not bought her book yet. But will when I can. Thanks! I think it is great that diet can help.
- 10 years, 3 months ago.
XH-6872 thanks so much for the recommendations. I subscribed to Dr. Ben Lynch's site so I will start from there and see where it takes me!
- 10 years, 3 months ago.
Carey Peltier , I also have adrenal issues. I found out through my sons dna that one of us has trouble with caffine and I think that is me. For one year I have not been able to drink coffee or I have even with one sip fast heart beat that doesnt die down for days. I did the 23andme testing. are you saying that national geographic goes back further?
- 10 years, 3 months ago.
XM-1509 it looks like there is no docter in Israel. I guess I will have to find one who does skype internationally or gather resources from the internet, or I can wait until I go to the USA for 2 months this summer.
- 10 years, 3 months ago.
Everyone from the last three posts is correct...genes and environmental toxins are both important and for someone like Laura, who is new to the world of methylation, I think it is important to understand that you should deal with both issues, in time, along with the diet. This site is throwing out so much information that can be difficult to comprehend by someone new to epigenetics .From someone who has been through this for 5 years, I can attest to the fact that all issues involved can be VERY overwhelming!!!
Which comes first, the chicken or the egg....genes or environment? The answer is that it IS different for each of us because of our different genes and our different environmental exposure AND emotional issues. Some patients can begin treatment that is offered by someone like Dr. Amy Myers with functional medicine, without dealing with the complex issues of genetics, and find wellness. Others are not as lucky and therefore need to look at genes for further guidance. Some patients first start with the genes and find wellness in that route. Others need to do both and possibly dig further to find all the pieces of our medical puzzle ... More
- 10 years, 3 months ago.
I can't stress enough that methylation is the key here. Without it you produce no glutathione, so you don't have nuerotransmitters like gabba and dopamine. It also limits your ability to detox. At that point any oppotunistic virus, bacteria or problem will affect you, where a healthy body would just deal with it. Try to reach dr kendal stewart in Austin and check out his lectures online.
- 10 years, 3 months ago.